July 6, 2020

Registration is now open for the 2020 #CaringForRare Bicycling Event Weekend. Challenge yourself to ride 15, 31, 62 or 100 miles on September 19th & 20th, VIRTUAL TOGETHER!

This is an unprecedented time and decisions about large group events are not easy. However,...

May 18, 2020

RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with the goal of developing insightful publicati...

March 27, 2020

Dear Friends,

Due to the coronavirus (COVID-19) outbreak, we made the difficult and appropriate decision to cancel our Mini Golf Outing at

Pine Creek Miniature Golf on May 3rd.

Here's the good news: our programs will carry on—and you can help make that happen!

We count on...

It happened again — another line infection. As we walked into Avery’s hospital room we watched as our son held down our beautiful and beautifully rare grandson as the phlebotomist tried her hardest to draw blood. Our son, Josh, knew blood was not going to be taken that...

September 10, 2018

Avery’s Hope has been very busy getting ready for their signature
charity bicycling event on September 15th and 16th. This year’s event
will take riders through scenic and historic Hunterdon and Bucks
Counties, riding through historic covered bridges and scenic

March 9, 2018

For the third year in a row, Avery's Hope is offering a Bicycling Event that raises money and awareness for children living with rare gastrointestinal diseases and their families who face the financial burdens of having children"living rare." Thank you for #caringforra...

March 6, 2018

Rare Disease Week on Capital Hill

During the last week of February, the Every Life Foundation for Rare Diseases held a conference in Washington, DC. The Rare Disease Week on Capitol Hill Conference included a Lobby Day with Senators and Members of Congress. Avery's Hope...

February 2, 2018


Whether you celebrate Valentine's Day or not, any day is the perfect day for the finest, fair traded, hand made and most delicious chocolates. Make a difference by getting your sweets from Pierre's in New Hope, Pennsylvania. 25% of each box of these beautiful choc...

January 1, 2018

2017 was an amazing year for Avery's Hope. We officially became a 501c3 organization with a mission of raising awareness and money for children living with rare GI diseases, and for their families who face the financial burdens associated with "living rare."

This month...

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Avery's Hope


Avery's Hope

P.O. Box 256

New Hope, Pennsylvania

United States

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