rESOURCES

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Courageous Parents Network is a "destination created by families, for families, to support, guide and strengthen them as they care for very sick children."

https://courageousparentsnetwork.org/

Global Genes offers "RARE Toolkits (which) provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients.

https://globalgenes.org/

Miracle Flights "is the nation's leading health and welfare, nonprofit flight organization. We fly children to distant specialize medical care."

http://miracleflights.org/

The Oley Foundation is a medical resource and a place to meet others who are living life with TPN.

https://oley.org/?-- 

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Gus Gear’s mission is to improve the safety and quality of life for those facing medical challenges. For more than a decade, we’ve worked passionately and diligently, delivering on that mission through the development, manufacturing, and distribution of high-quality medical devices at reasonable prices.

https://gusgear.net/

more ways to get involved and donate

Thank

you!