rESOURCES

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Courageous Parents Network is a "destination created by families, for families, to support, guide and strengthen them as they care for very sick children."

https://courageousparentsnetwork.org/

Global Genes offers "RARE Toolkits (which) provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients.

https://globalgenes.org/

Miracle Flights "is the nation's leading health and welfare, nonprofit flight organization. We fly children to distant specialize medical care."

http://miracleflights.org/

The Oley Foundation is a medical resource and a place to meet others who are living life with TPN.

https://oley.org/?-- 

aVERY'S hOPE GRANT

In honor of the organization’s namesake, the Board of Trustees of Avery’s Hope has also
created an opportunity for individual Microvillus Inclusion Disease patients and their families. A
small percentage of funds raised will be directly awarded to qualifying Microvillus
Inclusion Disease patients to supplement the expenses associated with medical care that the families don’t have the resources to cover.

more ways to get involved and donate

Thank

you!