We all know the struggles American's are facing today with the way our healthcare system operates. Both the Children's Hospital of Philadelphia and Children's Hospital of Pittsburgh do amazing things everyday to save the lives of children and give hope to them and their families. However, that does come at a premium cost. With the new administration that cost could potentially get even worse for families. We are here to raise awareness and to help these families who are overwhelmed with massive healthcare bills.
Every single staff member at CHOP has been AMAZING over the years in guiding Avery and many other children to living their best life. All they want is to see these kids happy and healthy. We are forever grateful to them and love every opportunity we can to help. Please take a look at all the wonderful things they do and consider getting involved.
Avery's parents were presented with a recommendation from Children's Hospital of Pittsburgh to undergo 3 major organ transplants. That decision, for any parent, is overwhelming; but with the hospital's guidance, Avery's parents decided to go in that direction and are still waiting for the right donor. Children's Hospital of Pittsburgh has pioneered transplant operations for years and does an incredible job. Learn more below.
"Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases."
ARE YOU OR SOMEONE YOU KNOW FACING A RARE DISEASE DIAGNOSIS?
There are many wonderful organizations out there that help families who have children with rare diseases. You are not alone.
looking for ways to get involved?
Volunteer and Sponsorships
We are always looking for individual volunteers to help us run our events. Corporate sponsorships are also the reason we are able to put 100% of all donations to charity.